Linkspam Friday: March 1

Last week was Aromantic Awareness Week! If you’d like to see my posts and the awesome content I reblogged from other aro-spec creatives, it’s on the @aroworlds Tumblr under the #aaw2019 tag.

I’m also working on a post to discuss changing my pronouns from singular they to ze/hir, because the why of feeling unsettled by my former pronouns is something that needs more than a paragraph or two. For the moment, while I’ve a great many book files to update, I’d like to state that I am going by the ze/hir set. I’ll accept “they” as an auxiliary pronoun for people who can’t use ze/hir in spoken English, but as I don’t feel this set describes me, I’d appreciate it if folks avoid this in written English.

I’m not being misgendered, exactly; they still positions me as outside the female/male binary. But it also doesn’t now describe my shape of genderlessness, and since I’ve reasons to regard they (in my experience) as a sort of compromise or concession pronoun, I’m becoming uncomfortable with it. But I’ll save more of this for later…

(Aside from Tes in Kit March, Hallo, Aro: Unspoken and A Gift of Naming show this set in use from the perspective of the narrating protagonist. If you want to know the spoken pronunciation, I’ve been referring people to this mypronouns.org article.)

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Linkspam Friday: November 30

Does anyone remember that I do this? I can’t blame you if you don’t. It’s been a while.

After a flurry of posting fiction, I’ve been updating book pages. I’ve now got cover art up for The Sorcerous Compendium of Postmortem Query. (Self, use a less unwieldy title next time.) I’m currently trying to focus on finishing the third Mara and Esher story because I can’t post the second Crew chapter: there’s just too big a revelation for the events that happen in A Quest of Spheres and Phalanges for those two pieces to be read out of order. (Self, that title isn’t much less unwieldy and you damn well know it.) After that, I’d really like to finish Love in the House of the Ravens (so unwieldy) so I can put that and One Strange Man up: together with The Adventurer King, they form a kind of trilogy in Darius’s identifying as aromantic. I have to admit that between Darius, Mara, Kit, Amelia and a little bit of Tes, I’ll be glad to put to bed the “discovering the word” genre of aromantic writing.

It’s a shape of storytelling that needs to exist, given how much it normalises our experiences as aromantics. I’m just so used to now writing characters who are trans or autistic with little explanation on their gender or neurotype that I’m feeling the need for a similar approach with aro-spec characters, too. I like writing about aromantic characters mentoring new aromantics because I can show folks already at that point, but I’m starting to yearn for a story that mentions a protagonist’s aromanticism, has no reaction from anyone else beyond casual acceptance and then concerns itself with everything but aromanticism.

In unrelated news, Tumblr decided that “chronic pain” is a porn-related tag and now has given folks with chronic pain no way to search for each other or find related content. Disabled people like me are collateral damage in their rush to delete dangerous and illegal content that shouldn’t have been allowed to flourish in the first place. Tumblr, if there’s porn in the chronic pain tag, the problem is the porn bots who shouldn’t be putting it there, not a community of chronic pain patients trying to find support and connection.

I know that there’s never been a purge of anything that hasn’t caught up innocent (most often marginalised) people in its wake, but surely by 2018 there’s enough historical precedent to realise that a little care is needed before hitting the wipe button?

(And I hate, I hate that I have far too much of a following to be able to walk away from a platform that thinks it acceptable to silence me as a disabled person.)

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Linkspam Friday: October 19

Last week, I had four medical appointments at the end of the week and nowhere near the organisational skills required to get a post organised before then–a feat not helped by a dire lack of content to post about.

This week, I still don’t have a lot of @aroworlds content. I’ve been working on the long-awaited post collecting allosexual aromantic media and hammering out a last-minute first draft for a vaguely-Halloween-ish short story about a necromancer’s summoning her outspoken great-aunt’s ghost to talk about her struggles with cute girls and romantic attraction. It results in a whole horde of local ghosts coming out as various shades of aro-spec and a terrible overuse of the word “bosom”. I would have appreciated the idea coming to mind sooner than Tuesday night, but, on the positive side, I have a complete 7k first draft written in three days despite more pain than I like (because I am not recovered from Kit March, of course). I think that’s the fastest I’ve ever, without stopping, written a complete story like that; more often, I write, get distracted by something else in the middle and finish the story days, weeks or months later.

I want to publish it properly, because it works wonderfully as a prequel for Love is the Reckoning, but I’ll post it here sometime before Halloween regardless of its polishing. I think having a friend, the fabulous @crimsonsquare, encourage me on its progress has helped me be able to sit and work to get it done. It’s easier to write when I feel like someone not me is interested in the story…

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Linkspam Friday: September 21

I wish psychologists and therapists didn’t give me the “we will work together to find options but you will have to work to have to implement them” speech. It wasn’t so bad before I had horrific therapeutic experiences, but now, when I struggle to trust medical professionals generally and have little reason to do so, I feel unseen right from the beginning.

That speech has always been the basis of why therapists pushed me towards traumatising-to-me things, like mindfulness meditation. (I will admit that most people won’t have my trauma around mindfulness, but explaining this often didn’t stop psychologists from making me try it for the umpteenth time.) When something wasn’t working for me, I wasn’t working hard enough to implement it. If I couldn’t do something, I wasn’t giving it a fair try. My not trying became the reason describing the failure for all the standard tricks pulled from the therapeutic grab-bag, and that’s now all I hear in that speech. A ready-made excuse that the therapist won’t look past.

I want help with making and sticking to routines, and I’m saying this as someone who has alarms on my iPad, who writes lists, who has tried all the conventional ways to make one work. Like many autistics, I do well with externally-imposed routines, like school, while severely floundering without its supporting structures. (No, the answer isn’t pretend I go to school, because I’ve been trying to do that for over a year!) I don’t know how to make myself not distracted; I don’t know how to stop writing and go to bed like I should. Obnoxiously-loud, jarring thrash metal alarms do not work. Getting up to turn off the iPad several feet away from my desk does not work. Now I’m afraid, because of that cursed speech one session in, that my failure to get a routine going will be my fault. Again. Or that, when I’ve dismissed every single pain-management strategy suggested because they do not work for me, I’ll be branded as difficult. Again.

When I’m constantly trying my hardest against a brain that isn’t and never will be made for an allistic universe, to encourage me to work without recognising my efforts now only makes me feel already a failure. After so many frustrating, bad, terrible and downright traumatic experiences with therapists, such a speech takes my suspicious tendencies and lets them run riot with distrust. After all her reassurances, I already feel like I’m too difficult for her.

If you work in mental health, especially if you’re handling people with more complex diagnoses and disabilities, cut the “you need to work hard to get better” line from your spiel. Start looking instead at the ways we’re already working hard. Because we are. And sometimes it takes all our strength and courage just to get out of bed, and we need the world to see it.

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Linkspam Friday: September 14

In the last fortnight, I’ve written twenty-eight thousand words on Birds of a Feather. It isn’t the reason why I didn’t put a post up last week–medical appointments and my birthday were the reason–but it is the reason why I didn’t work on the post earlier in the week, knowing that I had things going on which would likely stop me from posting. A complete 40k first draft, though, is worth it to me, and the time spent writing meant I didn’t have enough links for last week’s post anyway, so…

In personal news, I am yearning for the chance to have a proper shower. I’ve got stitches right where my thigh and hip meet, which is proving an inconvenient spot for conventional and commercial-but-affordable ways of sealing a wound against water. They should be coming out tomorrow and I’m praying that the wound will be okay to risk getting slightly damp after that. Showering as quickly as possible with my leg poking out is awkward, and not washing my hair every day (to try and limit showering time) is driving me to distraction. I’m sure this will sound quite privileged, but small changes like the amount of oils in my hair bother me. I can feel the oils left by someone else’s hands on my Tangle after they’ve touched it, so I can definitely feel two days’ worth of oil in my hair. Since short hair is a stim toy attached to my body for stimming convenience and I’m always running my hands through it, I badly want it back to its usual daily-washed state.

On the positive side, I have a new bout of lived experience to fuel a few fictional characters. Not that it was necessary, but I suppose there’s something to be said for fresh realism. I’ll now have Tes pacing back and forth because the stitches across hir palm won’t stop itching

Photo – My Gaming Gear and Unicorn Squishies: In which I show off my gaming box, my Meren of Clan Nel Toth playmat and two unicorn squishies, still trapped in their cling-wrap packaging, watching over proceedings. I started going for viewed-as-feminine colours and decorations for my gaming things as a protest, because I had girls come into my old job afraid to pick out pink card sleeves from fear they’ll be mocked or harassed. Being misgendered because of it wasn’t comfortable, but I do feel there was worth in showing that gaming accessories don’t have to be masculine-coded.

Teaser Post – The Performance Magician: In which I post a scene from the first draft of the aforementioned work. Read this if you want spoilers for Amelia’s feline naming philosophy, more of March’s passive-aggressive renaming of elfish people and creatures, why Darius named his pony after the swordseller in Certain Eldritch Artefacts and hints of how Efe is going to drive Darius into throwing a dictionary at the wall. I will confess that Darius’s irritation at words being used the wrong way is mine, and I am also hypocritical enough to not mind when I do it…

Photo – My Redecorated Notebooks: I was given some rainbow washi tape for my birthday, so I covered a notebook and three scratch pads in stripes of bright washi tape. It was nice having an afternoon to be crafty in a way that isn’t writing.

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Linkspam Friday: August 31

I’m still getting used to my new desk arrangement, but I’m finally able to sit at my desk chair for more than half an hour. Excuse me while I sigh, for I’d love to own a body that doesn’t react to new positions with migraines and pain in places that aren’t chronic pain sites. A former psychologist of mine used to argue that I’ve got the advantage of having experienced much of the pain and limitations that come with aging early, as though experience is a consolation prize for not being able to spend my twenties and thirties doing things I should take for granted. In truth, all it does is make me wonder how much worse my life is going to be when I’m sixty if I can’t cope now.

I rather suspect that kind of reframing doesn’t well work on the autistic and anxious.

It breaks me, sometimes, to think on how little I knew about good-for-me psychology and how much difficulty, struggle and trauma it’s taken to even recognise what my needs are. I’ve spent a lifetime trying not to be autistic such that, two years in, I only have an incomplete sense of what doesn’t work. What does work is a grey space of vagary, an eternal question mark. I think that question underpins everything I write–that it’s all one long, rambling conversation between an autistic and their subconscious trying to figure out what’s needed from the world.

Post – My New Desk Arrangement: Here’s a photo of my desk, my new chair height, temporary footstool and test sideways mouse, along with a little rambling on the lack of conversation about office accessibility for tall/short people.

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Linkspam Friday: August 17

This week, for various reasons, my anxiety has edged far too close to intolerable. Much of my response to it involves my trying to minimise the outward appearance of said anxiety, which saves me from judgement but denies me the release of expressing it. I’m falling apart so terrifically inside this membrane of skin while Western society is structured in such a way that I have limited ability to safely voice this experience outside it. Not only do I have to survive the pain of a brain that is disabling me, I have to survive both the lack of support this disability gets and that lack making it difficult to try and talk even to those few willing to listen.

In a way the ordinariness of anxiety, as something so common a significant percentage of people suffer it at least at one time, makes it difficult for those of us with severe forms (especially severe forms complicated by other diagnoses, like autism) to be acknowledged and treated as such. In therapy, I’m more often handed things that work for people with mild to moderate anxiety, with the expectation that’s all that’s needed to help me. The psychologists think I’m not trying hard enough, while I don’t feel seen or understood. I’m going back to a normal psychology program to be treated for my current peak of anxiety (this way I don’t have to ring or email anyone, just show up) but I am anxious (oh hear the bitter laughter) that this is going to be another disaster with another psychologist who treats my anxiety as moderate and ignores the autism.

I’ve had a good psychologist in the mix, and I like my current psychiatrist a lot, but that hasn’t erased my trauma. In many ways, it makes me feel that my trauma response is invalid or absurd. I know good medical professionals exist, so why do I panic so much about seeing them? Why can’t I trust that a new one will also be good? But I do and I can’t. New medical professionals terrify me, especially new mental health medical professionals.

I’m thinking about pausing my current projects to work on Ein’s next story (the sequel to The King of Gears and Bone). It might be more distressing than is good for me: that story cut far too close to the bone to write even at a time when I felt (more) stable. It might also give me a way of talking through my character at a time when I am so silenced. I’m feeling the pitch of anxiety, distrust and isolation, so if I must endure this again, perhaps I should make what use of it I can by channelling it into my character.

It’s not as though I’m accomplishing anything off my to-do-list right now, so if writing that out gives me somewhere to go with it all, maybe that won’t be a bad thing.

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