Links, Updates and Tumblr

I was planning to post new fiction today, but I never had the chance to edit. Between scrolling through thousands of posts on Tumblr to check for erroneous “NSFW” flags, making alternate accounts, backing up blogs and general unhappiness, my hands and shoulder are horrible. Stress, unsurprisingly, is a pain trigger, and I put my hands through hell in trying to catch Tumblr’s mistakes.

(Until last night, I didn’t even have a functioning chronic pain tag in which to post about said chronic pain flare. I am pleased that it has been returned to us; I am not pleased that Tumblr hasn’t acknowledged the damage caused by denying disabled people access to this tag.)

Mermaid sequin pillows, pencil cases, slime, squishies, chew pendants, text posts about aro autistics discussing our creativity and a post advertising Their Courts of Crows were flagged as NSFW. Everything flagged as explicit, despite being worksafe content, was for or about queer, autistic, aromantic, disabled and trans people. My posts seem to have become unflagged since I reported them, but I have no reason to trust that Tumblr will remain a safe space for marginalised content creators.

People who haven’t violated Tumblr’s new restrictions can’t trust Tumblr as a reliable host for our content. Where does that leave everyone else?

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Linkspam Friday: November 30

Does anyone remember that I do this? I can’t blame you if you don’t. It’s been a while.

After a flurry of posting fiction, I’ve been updating book pages. I’ve now got cover art up for The Sorcerous Compendium of Postmortem Query. (Self, use a less unwieldy title next time.) I’m currently trying to focus on finishing the third Mara and Esher story because I can’t post the second Crew chapter: there’s just too big a revelation for the events that happen in A Quest of Spheres and Phalanges for those two pieces to be read out of order. (Self, that title isn’t much less unwieldy and you damn well know it.) After that, I’d really like to finish Love in the House of the Ravens (so unwieldy) so I can put that and One Strange Man up: together with The Adventurer King, they form a kind of trilogy in Darius’s identifying as aromantic. I have to admit that between Darius, Mara, Kit, Amelia and a little bit of Tes, I’ll be glad to put to bed the “discovering the word” genre of aromantic writing.

It’s a shape of storytelling that needs to exist, given how much it normalises our experiences as aromantics. I’m just so used to now writing characters who are trans or autistic with little explanation on their gender or neurotype that I’m feeling the need for a similar approach with aro-spec characters, too. I like writing about aromantic characters mentoring new aromantics because I can show folks already at that point, but I’m starting to yearn for a story that mentions a protagonist’s aromanticism, has no reaction from anyone else beyond casual acceptance and then concerns itself with everything but aromanticism.

In unrelated news, Tumblr decided that “chronic pain” is a porn-related tag and now has given folks with chronic pain no way to search for each other or find related content. Disabled people like me are collateral damage in their rush to delete dangerous and illegal content that shouldn’t have been allowed to flourish in the first place. Tumblr, if there’s porn in the chronic pain tag, the problem is the porn bots who shouldn’t be putting it there, not a community of chronic pain patients trying to find support and connection.

I know that there’s never been a purge of anything that hasn’t caught up innocent (most often marginalised) people in its wake, but surely by 2018 there’s enough historical precedent to realise that a little care is needed before hitting the wipe button?

(And I hate, I hate that I have far too much of a following to be able to walk away from a platform that thinks it acceptable to silence me as a disabled person.)

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Fiction: Maybe When the Bones Crumble

Summary: His hand broken, his father dead, his brother rebelling and his mother dancing the bones, Einas ein Iteme has nobody at the Eyrie but the chancellor and one cursed question he can’t escape.

Content advisory: This story depicts several shades of ableism targeted at autistics and chronic pain patients, along with a good amount of casual cissexism and more direct heterosexism. I’m intentionally writing about the ableism that isn’t seen by the abled as ableism, but for this reason it may be more distressing for disabled readers. It also takes place in the context of civil war and familial abuse, with references to both. Please note that there’s references of medical mismanagement and poor handling of meltdowns; there’s also depictions of and references to self-harm, one of which may be interpreted as suicidal ideation. It’s also worth mentioning that this story does not have a happy ending, at least for the moment. This begins to change in Birds of a Feather.

Word count: 4, 945 words.

Note the first: Maybe When the Bones Crumble takes place before, during and immediately after Their Courts of Crows, detailing Ein’s time in the Eyrie while Paide and Zaishne war it out across Ihrne and Arsh. Please note that this isn’t written to be accessible to newcomers: I don’t spend words on detailed explanations on how Ein came to be injured or the fact of Ein’s autism.

Note the second: I have a relative who breaks me every time she asks me this same question. (What part of chronic pain do abled people not understand? All of it, including the fact that it doesn’t just magically go away.) Her latest rendition took place on the eighth anniversary of the injuries that caused my chronic wrist pain, an unexpected double-blow, so I wanted to put this hurt and frustration to story—the growing knowledge that just as my pain won’t change, neither will the attitudes of the people who hurt me. So this is a short, personal piece that I’m posting, fairly unedited, to get that weight of feeling outside my skin. I’ll also mention that this story is a deliberate examination of the way autism, anxiety and chronic pain come together, things inseparable in Ein and in me.

It seems to him then that pain is its own irrevocable truth.

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Linkspam Friday: October 19

Last week, I had four medical appointments at the end of the week and nowhere near the organisational skills required to get a post organised before then–a feat not helped by a dire lack of content to post about.

This week, I still don’t have a lot of @aroworlds content. I’ve been working on the long-awaited post collecting allosexual aromantic media and hammering out a last-minute first draft for a vaguely-Halloween-ish short story about a necromancer’s summoning her outspoken great-aunt’s ghost to talk about her struggles with cute girls and romantic attraction. It results in a whole horde of local ghosts coming out as various shades of aro-spec and a terrible overuse of the word “bosom”. I would have appreciated the idea coming to mind sooner than Tuesday night, but, on the positive side, I have a complete 7k first draft written in three days despite more pain than I like (because I am not recovered from Kit March, of course). I think that’s the fastest I’ve ever, without stopping, written a complete story like that; more often, I write, get distracted by something else in the middle and finish the story days, weeks or months later.

I want to publish it properly, because it works wonderfully as a prequel for Love is the Reckoning, but I’ll post it here sometime before Halloween regardless of its polishing. I think having a friend, the fabulous @crimsonsquare, encourage me on its progress has helped me be able to sit and work to get it done. It’s easier to write when I feel like someone not me is interested in the story…

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Linkspam Friday: September 21

I wish psychologists and therapists didn’t give me the “we will work together to find options but you will have to work to have to implement them” speech. It wasn’t so bad before I had horrific therapeutic experiences, but now, when I struggle to trust medical professionals generally and have little reason to do so, I feel unseen right from the beginning.

That speech has always been the basis of why therapists pushed me towards traumatising-to-me things, like mindfulness meditation. (I will admit that most people won’t have my trauma around mindfulness, but explaining this often didn’t stop psychologists from making me try it for the umpteenth time.) When something wasn’t working for me, I wasn’t working hard enough to implement it. If I couldn’t do something, I wasn’t giving it a fair try. My not trying became the reason describing the failure for all the standard tricks pulled from the therapeutic grab-bag, and that’s now all I hear in that speech. A ready-made excuse that the therapist won’t look past.

I want help with making and sticking to routines, and I’m saying this as someone who has alarms on my iPad, who writes lists, who has tried all the conventional ways to make one work. Like many autistics, I do well with externally-imposed routines, like school, while severely floundering without its supporting structures. (No, the answer isn’t pretend I go to school, because I’ve been trying to do that for over a year!) I don’t know how to make myself not distracted; I don’t know how to stop writing and go to bed like I should. Obnoxiously-loud, jarring thrash metal alarms do not work. Getting up to turn off the iPad several feet away from my desk does not work. Now I’m afraid, because of that cursed speech one session in, that my failure to get a routine going will be my fault. Again. Or that, when I’ve dismissed every single pain-management strategy suggested because they do not work for me, I’ll be branded as difficult. Again.

When I’m constantly trying my hardest against a brain that isn’t and never will be made for an allistic universe, to encourage me to work without recognising my efforts now only makes me feel already a failure. After so many frustrating, bad, terrible and downright traumatic experiences with therapists, such a speech takes my suspicious tendencies and lets them run riot with distrust. After all her reassurances, I already feel like I’m too difficult for her.

If you work in mental health, especially if you’re handling people with more complex diagnoses and disabilities, cut the “you need to work hard to get better” line from your spiel. Start looking instead at the ways we’re already working hard. Because we are. And sometimes it takes all our strength and courage just to get out of bed, and we need the world to see it.

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Linkspam Friday: August 17

This week, for various reasons, my anxiety has edged far too close to intolerable. Much of my response to it involves my trying to minimise the outward appearance of said anxiety, which saves me from judgement but denies me the release of expressing it. I’m falling apart so terrifically inside this membrane of skin while Western society is structured in such a way that I have limited ability to safely voice this experience outside it. Not only do I have to survive the pain of a brain that is disabling me, I have to survive both the lack of support this disability gets and that lack making it difficult to try and talk even to those few willing to listen.

In a way the ordinariness of anxiety, as something so common a significant percentage of people suffer it at least at one time, makes it difficult for those of us with severe forms (especially severe forms complicated by other diagnoses, like autism) to be acknowledged and treated as such. In therapy, I’m more often handed things that work for people with mild to moderate anxiety, with the expectation that’s all that’s needed to help me. The psychologists think I’m not trying hard enough, while I don’t feel seen or understood. I’m going back to a normal psychology program to be treated for my current peak of anxiety (this way I don’t have to ring or email anyone, just show up) but I am anxious (oh hear the bitter laughter) that this is going to be another disaster with another psychologist who treats my anxiety as moderate and ignores the autism.

I’ve had a good psychologist in the mix, and I like my current psychiatrist a lot, but that hasn’t erased my trauma. In many ways, it makes me feel that my trauma response is invalid or absurd. I know good medical professionals exist, so why do I panic so much about seeing them? Why can’t I trust that a new one will also be good? But I do and I can’t. New medical professionals terrify me, especially new mental health medical professionals.

I’m thinking about pausing my current projects to work on Ein’s next story (the sequel to The King of Gears and Bone). It might be more distressing than is good for me: that story cut far too close to the bone to write even at a time when I felt (more) stable. It might also give me a way of talking through my character at a time when I am so silenced. I’m feeling the pitch of anxiety, distrust and isolation, so if I must endure this again, perhaps I should make what use of it I can by channelling it into my character.

It’s not as though I’m accomplishing anything off my to-do-list right now, so if writing that out gives me somewhere to go with it all, maybe that won’t be a bad thing.

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Linkspam Friday: August 10

I’m trying to get used to a new keyboard/desk arrangement on the advice from the OT at the pain clinic, which is making typing difficult for me. Even the slightest of changes in posture and arrangement throw me off to a ridiculous degree in terms of body memory, pain and not triggering migraines–I will get used to it, probably, but the adjustment period is difficult, more disabling for me than my pain. I’ve now also got to hunt down an affordable sideways mouse to see if that helps me use it more comfortably.

On the positive side, I do keep my shoulders and neck in the correct position, and I’ve been using my iPad as well as it is possible to use a tablet in terms of propping it on pillows and my bag. His opinion is more that I shouldn’t be trying to use it with the tucked-in-no-arms-out-everywhere position wielded by everyone else … but it’d be so nice to be able to comfortably use my devices on the train without needing to occupy two seats. I still don’t know how other folks do this. Not being autistic? Souls sold to demons? Who knows, because I don’t.

Apparently I type fast, but I talk, walk and read fast, too, so this should be a surprise to nobody. I’ve never operated at normal human speed.

Post: “Heartfelt”, The Good Doctor and Autistic Character Arc – In which I prove that I am still not over this ableist disaster of an episode by complaining about it and discussing the need to centre our need for representation instead on the works of autistic creatives. I admit that I have a few horses in this race, but I am so tired of seeing The Good Doctor praised for including a character who moves like me when the story is still so focused on seeing Shaun become more allistic. One day I’ll have the spoons to write a long-arse essay on why I am not a fan.

Post: Trans Characters Versus Trans Fiction – In which I rant about the phenomenon of seeing any book with a trans side character (by a cis author) recommended (by cis reviewers) as trans fiction … while trans authors of trans fiction with trans narrating protagonists struggle to get the same recommendations and audience. I have horses in this race as well to say the least, but am I tried of having well-meaning folks recommend me a story as important trans rep only to discover that the character is a side character.

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