Linkspam Friday: September 21

I wish psychologists and therapists didn’t give me the “we will work together to find options but you will have to work to have to implement them” speech. It wasn’t so bad before I had horrific therapeutic experiences, but now, when I struggle to trust medical professionals generally and have little reason to do so, I feel unseen right from the beginning.

That speech has always been the basis of why therapists pushed me towards traumatising-to-me things, like mindfulness meditation. (I will admit that most people won’t have my trauma around mindfulness, but explaining this often didn’t stop psychologists from making me try it for the umpteenth time.) When something wasn’t working for me, I wasn’t working hard enough to implement it. If I couldn’t do something, I wasn’t giving it a fair try. My not trying became the reason describing the failure for all the standard tricks pulled from the therapeutic grab-bag, and that’s now all I hear in that speech. A ready-made excuse that the therapist won’t look past.

I want help with making and sticking to routines, and I’m saying this as someone who has alarms on my iPad, who writes lists, who has tried all the conventional ways to make one work. Like many autistics, I do well with externally-imposed routines, like school, while severely floundering without its supporting structures. (No, the answer isn’t pretend I go to school, because I’ve been trying to do that for over a year!) I don’t know how to make myself not distracted; I don’t know how to stop writing and go to bed like I should. Obnoxiously-loud, jarring thrash metal alarms do not work. Getting up to turn off the iPad several feet away from my desk does not work. Now I’m afraid, because of that cursed speech one session in, that my failure to get a routine going will be my fault. Again. Or that, when I’ve dismissed every single pain-management strategy suggested because they do not work for me, I’ll be branded as difficult. Again.

When I’m constantly trying my hardest against a brain that isn’t and never will be made for an allistic universe, to encourage me to work without recognising my efforts now only makes me feel already a failure. After so many frustrating, bad, terrible and downright traumatic experiences with therapists, such a speech takes my suspicious tendencies and lets them run riot with distrust. After all her reassurances, I already feel like I’m too difficult for her.

If you work in mental health, especially if you’re handling people with more complex diagnoses and disabilities, cut the “you need to work hard to get better” line from your spiel. Start looking instead at the ways we’re already working hard. Because we are. And sometimes it takes all our strength and courage just to get out of bed, and we need the world to see it.

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Linkspam Friday: August 31

I’m still getting used to my new desk arrangement, but I’m finally able to sit at my desk chair for more than half an hour. Excuse me while I sigh, for I’d love to own a body that doesn’t react to new positions with migraines and pain in places that aren’t chronic pain sites. A former psychologist of mine used to argue that I’ve got the advantage of having experienced much of the pain and limitations that come with aging early, as though experience is a consolation prize for not being able to spend my twenties and thirties doing things I should take for granted. In truth, all it does is make me wonder how much worse my life is going to be when I’m sixty if I can’t cope now.

I rather suspect that kind of reframing doesn’t well work on the autistic and anxious.

It breaks me, sometimes, to think on how little I knew about good-for-me psychology and how much difficulty, struggle and trauma it’s taken to even recognise what my needs are. I’ve spent a lifetime trying not to be autistic such that, two years in, I only have an incomplete sense of what doesn’t work. What does work is a grey space of vagary, an eternal question mark. I think that question underpins everything I write–that it’s all one long, rambling conversation between an autistic and their subconscious trying to figure out what’s needed from the world.

Post – My New Desk Arrangement: Here’s a photo of my desk, my new chair height, temporary footstool and test sideways mouse, along with a little rambling on the lack of conversation about office accessibility for tall/short people.

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Linkspam Friday: August 17

This week, for various reasons, my anxiety has edged far too close to intolerable. Much of my response to it involves my trying to minimise the outward appearance of said anxiety, which saves me from judgement but denies me the release of expressing it. I’m falling apart so terrifically inside this membrane of skin while Western society is structured in such a way that I have limited ability to safely voice this experience outside it. Not only do I have to survive the pain of a brain that is disabling me, I have to survive both the lack of support this disability gets and that lack making it difficult to try and talk even to those few willing to listen.

In a way the ordinariness of anxiety, as something so common a significant percentage of people suffer it at least at one time, makes it difficult for those of us with severe forms (especially severe forms complicated by other diagnoses, like autism) to be acknowledged and treated as such. In therapy, I’m more often handed things that work for people with mild to moderate anxiety, with the expectation that’s all that’s needed to help me. The psychologists think I’m not trying hard enough, while I don’t feel seen or understood. I’m going back to a normal psychology program to be treated for my current peak of anxiety (this way I don’t have to ring or email anyone, just show up) but I am anxious (oh hear the bitter laughter) that this is going to be another disaster with another psychologist who treats my anxiety as moderate and ignores the autism.

I’ve had a good psychologist in the mix, and I like my current psychiatrist a lot, but that hasn’t erased my trauma. In many ways, it makes me feel that my trauma response is invalid or absurd. I know good medical professionals exist, so why do I panic so much about seeing them? Why can’t I trust that a new one will also be good? But I do and I can’t. New medical professionals terrify me, especially new mental health medical professionals.

I’m thinking about pausing my current projects to work on Ein’s next story (the sequel to The King of Gears and Bone). It might be more distressing than is good for me: that story cut far too close to the bone to write even at a time when I felt (more) stable. It might also give me a way of talking through my character at a time when I am so silenced. I’m feeling the pitch of anxiety, distrust and isolation, so if I must endure this again, perhaps I should make what use of it I can by channelling it into my character.

It’s not as though I’m accomplishing anything off my to-do-list right now, so if writing that out gives me somewhere to go with it all, maybe that won’t be a bad thing.

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Linkspam Friday: August 10

I’m trying to get used to a new keyboard/desk arrangement on the advice from the OT at the pain clinic, which is making typing difficult for me. Even the slightest of changes in posture and arrangement throw me off to a ridiculous degree in terms of body memory, pain and not triggering migraines–I will get used to it, probably, but the adjustment period is difficult, more disabling for me than my pain. I’ve now also got to hunt down an affordable sideways mouse to see if that helps me use it more comfortably.

On the positive side, I do keep my shoulders and neck in the correct position, and I’ve been using my iPad as well as it is possible to use a tablet in terms of propping it on pillows and my bag. His opinion is more that I shouldn’t be trying to use it with the tucked-in-no-arms-out-everywhere position wielded by everyone else … but it’d be so nice to be able to comfortably use my devices on the train without needing to occupy two seats. I still don’t know how other folks do this. Not being autistic? Souls sold to demons? Who knows, because I don’t.

Apparently I type fast, but I talk, walk and read fast, too, so this should be a surprise to nobody. I’ve never operated at normal human speed.

Post: “Heartfelt”, The Good Doctor and Autistic Character Arc – In which I prove that I am still not over this ableist disaster of an episode by complaining about it and discussing the need to centre our need for representation instead on the works of autistic creatives. I admit that I have a few horses in this race, but I am so tired of seeing The Good Doctor praised for including a character who moves like me when the story is still so focused on seeing Shaun become more allistic. One day I’ll have the spoons to write a long-arse essay on why I am not a fan.

Post: Trans Characters Versus Trans Fiction – In which I rant about the phenomenon of seeing any book with a trans side character (by a cis author) recommended (by cis reviewers) as trans fiction … while trans authors of trans fiction with trans narrating protagonists struggle to get the same recommendations and audience. I have horses in this race as well to say the least, but am I tried of having well-meaning folks recommend me a story as important trans rep only to discover that the character is a side character.

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Linkspam Friday: August 3

This week I went to a chronic pain information session where the attending psychologist lovingly spoke of mindfulness for far longer than I find comfortable. I, on the other hand, sat there as a stubborn autistic in an unreachable state of hell, no. I think she knew it, too, because she tried to talk to me after the event. Thankfully, the (good!) psychiatrist I’m seeing as part of the same program is really on board with autism, told me that we do not have to go there with mindfulness and I don’t have to see the program psychologists, so it’s more an annoyance than a problem.

On the positive side, this information session didn’t spent three hours demonising pain medication like most others I’ve been to. For a government-funded pain clinic, that’s actually impressive: the information sessions I went to at the first clinic were basically Pain Medication Is The Devil propaganda. It was close to the same addiction/opioid crisis spiel I get from “normal” people with a little more medical jargon thrown in, but one should never underestimate the ableism in medicine. I don’t. I can’t. I’ve lost count of how many times I’ve heard pain specialists talk about pain meds as a “crutch” to a room of disabled pain patients while forgetting that a crutch is a mobility aid and not a ball and chain. It’s remarkable when I don’t have to sigh at it.

So! What else have I done this week?

Header text: Aro Worlds: Connecting aro creatives and aro audiences. Header is in antique black type above an ornate divider.

Ask – Character Tropes and Identity: In which an anon asks me about a character trope that might be read as aromisia and writing an ace character who doesn’t use the split-attraction model, and I talk writing a world full of a-spec in response. I also make an addition on the Tumblr post in talking about allowing creators to prioritise one’s own marginalised identity over broader representation in our protagonists, which I should have mentioned in the original.

Post – The Quiver and the Quill: I’ve been murmuring about starting a collective for independent aro-spec writers, given the lack of specialised community, promotion and support–especially for those of us who can’t find it in asexual spaces. In this post I both offered up a name and underestimated the aro-spec community’s love for subtle puns and alliteration!

Fiction – What If It Isn’t: A month ago, I posted a short story to Tumblr, so this week I posted it to the WordPress site as well. If you want a cute, fluffy, unresearched piece about adorable sapphics planning to figure out a QPR after robbing an art gallery, plus an obligatory autistic aro-spec protagonist, this is for you. Also available in PDF and EPUB, because I can.

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Linkspam Friday: July 27

Here’s the thing. I run multiple blogs. I’m putting new content out onto the internet every week. Most days, in fact, between review posts, artist profiles, the many questions in my Tumblr askbox and a few rants. And, unless you’re following me on every single blog, folks have got no idea as to just how much I’m doing online. Additionally, finding the time and spoons to create new content for this blog is difficult, as you’ve probably noticed from the sound of chirping crickets echoing around these cavernous walls.

(I’ve had a relative pass away in the last fortnight, so my well-laid plans have gone to hell. The fiction writing I’ve done has been very much in the arena of trying to distract myself from multiple panic attacks.)

So, every Friday, I’m going to collect everything I’ve worked on over the last week and post it here, and finish with a short ramble about whatever it is I’ve been drafting that week. Will it be a random mishmash of all things K. A.? Absolutely. Will you need to scroll past many things you’re not interested in? Quite likely. Will it help drown out those chirping crickets? We’ll see…

Header text: Aro Worlds: Connecting aro creatives and aro audiences. Header is in antique black type above an ornate divider.

WordPress Mirror: This week I’ve made a WordPress mirror for my @aroworlds blog on Tumblr as a means to archive static pages of the “about this blog” sort. This is because Tumblr is great for connecting with people and absolutely terrible as a blogging platform: it won’t let Android users access static pages. In fairness, this is only one of the ways Tumblr is ridiculous…

Aro-Spec Artist Profiles: I’ve also been updating the master page for the Aro-Spec Artist Profiles, with said profiles now being hosted on both Tumblr and WordPress. If you’re after more aro-spec creativity than is available on this blog, we’ve got twelve other talented creators who deserve your support and encouragement.

Aro-Spec Artist Profile – Neir / R. Tally: This week aroflux poet, musician and author R. Tally came in to talk with us about identity and connection to other people, composing non-romantic musical pieces, the fear of misinterpretation by alloromantics and the challenge of finding an audience for non-romantic works.

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