Not Only the Label

Before I came back to writing and posting it here (for me a profoundly terrifying thing) I was considering whether or not I should just build a new website from scratch. I’ve got a lot more .org experience now, thanks to my work on the Twilight School website, and I would definitely have fun building my own self-hosted blog where the CMS allows me more control over certain elements and I’m not constrained by a client’s finances and design requirements.

There were two reasons why I was contemplating this.

One was that the Twilight School is sponsored by the Salesian College Sunbury, and I’m so far out of the closet I’ve lost the way back to Narnia. Maybe it would be safer to have an online identity that’s a teensy bit less, well, queer?

This is now irrelevant, since I’ve outed myself to the Twilight School community and the world hasn’t imploded. In point of fact, I experienced the entirely underwhelming reaction of … nothing. Man, when I’m steeling myself up to cop homophobia that might even extend to the loss of my job, it’s bewildering to then experience silence. Good, certainly, and I hope this is the beginning of interactions with people of Christian faith who are, if not accepting, at least considerate enough to keep their beliefs about my legitimacy as a human being to themselves, but bewildering.

(I’ve also been sitting on a post about how community does in fact comprise those of us who dare to be queer, and any school promoting their community outreach initiatives doesn’t get to pick and choose which parts of the community are welcome, which is something like being all dressed up with nowhere to go.)

The other was … well, most of the things I’m feeling and exploring right now aren’t all that queer, taken in a separatist/isolationist view that denies the importance and relevance of intersectionality. I’ve been asked to write a piece about turning points for a publication, and while my first thought was to write about the subtlety of turning points, I’m actually thinking that what I’m feeling right now is the turning point encapsulated in the word “autism”.

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All The Puzzle Pieces, Please

I have a roller bag/trolley. It’s a battered railway-issue bag I’ve had for a little over a year, and it goes almost everywhere I go. People comment on it as though it’s funny: they can’t imagine why I need to take it everywhere.

I consider it an accessibility aid for anything that involves leaving the house.

I have things I need to take everywhere with me. My wrist and thumb splints, because my pain is something I can’t plan, and being in pain at work without a splint is a nightmare. A thick hooded jumper, because my hypersensitivity to cold means that waiting at railway platforms at night is agonising. A woollen, hooded scarf, ditto. A large tub of Play-Doh, for stimming. A bottle of water, for timetabled and non-timetabled medication. An umbrella, because I live in Geelong/Melbourne where we can get five seasons in a single day. Lunch, if I’m going to work, because I can’t afford to just buy two meals a working day on the hours I get.

I’ve also got optional things I take everywhere with me, like my netbook (I use all time I spend on trains), deck boxes and a dice bag (you never know when you might run into someone and regret not having a deck on you), a playmat (this makes it so much easier for me to pick cards, even sleeved cards, up off the table) and other odds-and-ends (wet and dry tissues, nail scissors, deodorant, a tape measure because the Warhammer players never bring their own and sometimes the store one gets lost). Yes, I have the bloody kitchen sink, but you’d be amazed at all the times someone has needed something I just happen to have.

I also have a rainbow-striped satchel over my shoulder for absolutely-bloody-essential things like wallet, headphones (I need something to drown out the noises made by other people/traffic/trains), coin purse, meds, bandaids, notepad and pen. A satchel bag where I can just reach in without pulling the bag off a shoulder and unzipping is so much better than a backpack, even if a backpack is less gendering.

I also need, quite simply, a place to put anything I buy.

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The Agency of Hardwiring

A friend sent me this article on the correlation between transgender identities and autism spectrum disorders. (Please read on before clicking.) I don’t ever want to say that being trans is an autistic thing – although it happens that all the trans people I know are also autistic, which is a bias most likely explained by the habit of like-minded people flocking together – but when I look at the significant amount of non-binary (which, I remind everyone, is a transgender identity) autistic bloggers, I’m all for acknowledgement. It meets my lived experience, after all.

What I didn’t quite expect was some scientific bullshit about “extreme male brain” and lack of empathy used to rationalise the existence of binary trans-masculine autistics, i.e. the assumption that female-designated autistics are “more masculine” in brain function and therefore it’s reasonable for many of them to be trans men. This invalidates every conversation I’ve ever had with another autistic person (whom I generally find to be more empathetic towards me than the average neurotypical), ignores the fact that autistic trans women exist and furthers an assumption that often denies female-designated people diagnosis (because if we’re not autistic in ways commonly expressed by men, we’re not seen as autistic). It also comes with a massive misunderstanding/mislabeling of the trans experience and forgets, entirely, about non-binary people when it’s not contributing to even more gendering. It’s okay; we non-binary folk are used to not existing. It’s the story of our lives.

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A Philosophy of Natural Movement, Part 1

This is a long multi-part essay on the experience of being autistic, the process of gaining the label, and the nightmare (especially the last two years, especially especially the last nine months) it’s been being an undiagnosed autistic person being treated for depression, anxiety and chronic pain in the Australian healthcare system.

So, of course, I’m going to start with my ongoing love affair with metal music.

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A return to the world of monsters

(As a prologue, this post goes out to the people of my ACT – Acceptance and Commitment Therapy – group, for their encouragement when I spoke about my blog and the fears that have kept me from writing. Also to Julia Kyle, who just doesn’t give up on me. Thank you for making me feel as though I can, maybe, re-become my warrior-writer self.)

I wish I didn’t have to begin with this literal title.

I wish it with all my heart.

At first … at first I thought it would be okay, moving back to my parents’ place. It would only be for six months or so; I’ve got a room at a mate’s place, back in my beloved Melbourne, as soon as his sister moves out. It would give me time to recover from how severe my anxiety and depression have gotten, living in a space where I have to worry less about the basic struggles of just looking after myself. It would give me time to worry less about money, at least in theory, and work on finding a second job so I can support myself with fewer stresses. It would only be for six months. Endurable, right?

Oh, the lies we tell ourselves when we have no other option!

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Depression: words on the things we lose

Of late I’ve been trying to figure out how to manage more shifts at work, a new story idea that is essentially about queers with mental illness trying to solve crime while living the stigma and erasure their diagnoses and treatments bring, the ongoing mountain that is trying to clean my house, and survival. Survival isn’t so easy when everything from TV to the wreckage littering my bed reminds me of my failure to just be a functional person.

Needless to say, depression dogs my footsteps, a snarling, smothering shadow of barely-dammed despair. Right now the only place I can escape it – where I feel capable, functional and successful at anything – is while writing fiction or handling stock/talking to customers at work, but even that comes at a cost, given the emotional exhaustion that follows shunting aside my feelings for a shift or two. Yet I can’t survive without that escape from my own head, such that the things that help me survive are making it harder for me to function in general.

I can write, and while I am lost in the words I feel almost alive, but if I write all the time I can’t do anything else: I’m addicted to that brief flash of not-depression I feel such that getting up and attempting laundry or the dishes brings on an even greater awareness of my world as it is, and there’s nothing about that awareness that is easily endurable.

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Ropes, waves and other useful neurotransmitters: the words of depression

Trigger warning: in-depth, personal discussions of depression, chronic pain and suicide/suicidal ideation/self-harm.

I’m writing this because yesterday I spent about twenty minutes crying to my psychologist that people don’t talk about this, and because right now the only way I feel even remotely alive is through the act of using my words to do something about that. Most of the ropes I’m holding onto are fraying. This is the only one that’s even remotely sturdy, the fierce motivation I have to make the worlds unspoken real, so once again I’ll commit the crime (not a crime) of honesty if it’s the thing that keeps me breathing. (I’m a hero-rescuer type; I’m sure you noticed.) This motivation is strong and fierce, even in depression, enough that it’s so very easy to look at me and think I am not – well, my psychologist is using lovely words like ‘crisis’ – drowning in a pit brought on by chronic self-hatred and a lack of serotonin and other useful neurotransmitters that make the difference between stability and collapse.

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