Linkspam Friday: September 21

I wish psychologists and therapists didn’t give me the “we will work together to find options but you will have to work to have to implement them” speech. It wasn’t so bad before I had horrific therapeutic experiences, but now, when I struggle to trust medical professionals generally and have little reason to do so, I feel unseen right from the beginning.

That speech has always been the basis of why therapists pushed me towards traumatising-to-me things, like mindfulness meditation. (I will admit that most people won’t have my trauma around mindfulness, but explaining this often didn’t stop psychologists from making me try it for the umpteenth time.) When something wasn’t working for me, I wasn’t working hard enough to implement it. If I couldn’t do something, I wasn’t giving it a fair try. My not trying became the reason describing the failure for all the standard tricks pulled from the therapeutic grab-bag, and that’s now all I hear in that speech. A ready-made excuse that the therapist won’t look past.

I want help with making and sticking to routines, and I’m saying this as someone who has alarms on my iPad, who writes lists, who has tried all the conventional ways to make one work. Like many autistics, I do well with externally-imposed routines, like school, while severely floundering without its supporting structures. (No, the answer isn’t pretend I go to school, because I’ve been trying to do that for over a year!) I don’t know how to make myself not distracted; I don’t know how to stop writing and go to bed like I should. Obnoxiously-loud, jarring thrash metal alarms do not work. Getting up to turn off the iPad several feet away from my desk does not work. Now I’m afraid, because of that cursed speech one session in, that my failure to get a routine going will be my fault. Again. Or that, when I’ve dismissed every single pain-management strategy suggested because they do not work for me, I’ll be branded as difficult. Again.

When I’m constantly trying my hardest against a brain that isn’t and never will be made for an allistic universe, to encourage me to work without recognising my efforts now only makes me feel already a failure. After so many frustrating, bad, terrible and downright traumatic experiences with therapists, such a speech takes my suspicious tendencies and lets them run riot with distrust. After all her reassurances, I already feel like I’m too difficult for her.

If you work in mental health, especially if you’re handling people with more complex diagnoses and disabilities, cut the “you need to work hard to get better” line from your spiel. Start looking instead at the ways we’re already working hard. Because we are. And sometimes it takes all our strength and courage just to get out of bed, and we need the world to see it.

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Survival of Naming

My mother, most of the time, can’t remember my real name.

It doesn’t matter how many times I correct her. She isn’t good at remembering things. The birth name, legal name, dead name, the name that I never speak or use myself, slides from her lips, and she never sees me wince. If I do protest, if I correct her, if I show exasperation or annoyance, she gets angry. I know her reasoning: she has a bad memory. It isn’t fair that I expect her to remember a name that isn’t the name she chose for me, isn’t the name she gave me at birth, isn’t the name ingrained in her understanding of the person I am. It’s too hard, too much, to ask her to think something that isn’t there in her own head.

Sometimes I feel strangled, as an autistic person who knows with painful understanding what it means to forget names. I should be more understanding, shouldn’t I?

But it’s my name. It isn’t even as though I’ve changed it to something wildly different: I’ve just hacked off six letters. Why is that so hard to remember?

Her anger works. It holds me rigid and silent. There’s no point in correcting if she’ll only yell at me for being an ungrateful arsehole who isn’t considerate of her memory struggles. She’s patient with me, isn’t she? So why can’t I be with her?

Here I am, strangled again.

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The Age of Mindfulness

Today I found a half-size water bottle. I bought it because my full-size water bottles (one green, one purple) are too heavy for me to carry in my satchel, because it was only a dollar fifty, and because it was green and purple. This bottle also just happened to have the coolest spin-up twist top, at which point I stood in front of the heater for a few moments just twisting the top open and closed, so I now own an item that is both useful for reasons unrelated to the attraction of the spinning top and a colourful stealth stim toy. Thank you, Sistema. If your stuff weren’t so ridiculously expensive most of the time, I’d buy more of it.

So I’m standing in front of the heater twisting this top in wild joy at the discovery that this water bottle top is an ideal out-of-the-house fidget nobody will take askance because I’m always that person with a water bottle … and also just because it’s really fun to see the purple nozzle pop up out of the green base.

My mistake lies in mentioning my enjoyment to the person in the lounge room with me.

“You’re just a big kid, aren’t you?”

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Silence in Mimicry

The knock sounds just as Klirran places her brush and comb on the bed, careful not to touch the rough outer blanket, in a line beside her soap, washcloth and toothbrush. She scowls, glances at the washstand—the soda is right there and it’ll take an instant to grab it and finish the line—but the second knock is louder, followed immediately by a third. Impatience. Not Inmera, since the Cloisters won’t need to talk to her about this newest occurrence, and everybody else knows not to disrupt Klirran while packing if the option to leave her alone exists. Emergency, then, or annoyance. Emergency means yelling, though. Calls to grab her gear and come. Annoyance. Klirran sighs, but she grasps the doorknob, the brass worn smooth and shiny under her hand. How many people have used this little guest room? How many felt trapped here?

She turns the key with her other hand, marks the way the loops of the bow leave red-grey momentarily-throbbing indents against her fingers, pulls the door open.

A woman, her tall and lean body tense and pulled inwards, the green silk sleeves tugged tight over her folded arms. Klirran can’t decide if she wants something to grip or if she wants to make the fabric prominent, although with Caiára it is likely both. Anger, certainly. Always is with her.

Sacrifices, though, don’t forget the green, and neither should Klirran.

This is a first-draft piece, so my apologies for its present roughness. It’s also my first piece in this character’s POV. Klirran is an intersex, bisexual, poly, autistic healer mage who is smarter than you and doesn’t care if you’re bothered by knowing it.  I loved writing her, even before I got to write in her POV, because she’s confident in her own intelligence, ability, sexuality and gender. It’s wonderful to write a character who is confident (unlike me) and confident despite the societal indoctrination we (non-majority) people get that strips confidence away from us. She doesn’t waste time trying to be something she’s not, and that’s something I’m very much trying to learn.

That last thing is why this piece is important to me, the writer, and why any future reader reaction is downright irrelevant.

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A Dialogue in Good Faith

I haven’t said it here, yet – there are a great many things I’m yet to speak about here on the matter of finding my way back to myself – but I started freelance work this year designing event flyers and administrating the Twilight School website.

The Twilight School, run by Bruno Lettieri (of Rotunda fame, one of the most amazing and generous people that ever lived) is the community outreach project of the Salesian College Sunbury. The Salesian College sponsors something quite unique: an after-hours education service providing classes, guest speakers and other community events, at low-cost, for the Sunbury community. Most of these conversations involve literary personages and community health workers, and the classes run from cooking to writing and gardening to photography. The Twilight School also sponsors the Good Man Project, which is about fostering and developing healthy and open emotional dialogue with, between and among men. Barn Owl Journal is another of Bruno’s pet projects for getting creative writing out into the community, and you can read the current issue here.

(For an event example, you can go and see actor, comedian and writer John Clarke this month for $10 plus drinks, and all you need to do is bring a plate of food for the communal table. We’re talking an evening with a seriously famous, at least in Australia and New Zealand, seriously clever satirist for $10 and however much it costs you to bring a plate of sandwiches or cake. If you’re in Melbourne and this interests you, book now, because places are filling up. If I were living anywhere reasonably close to Sunbury at the moment, I’d go.)

I can’t overstate how important this sort of thing is. The Twilight School is offering and allowing real connection, expression and education in a world where the privileged have an infinite number of avenues in which to communicate yet we are still discouraged from being honest and vulnerable in the company of others.

(When your feminist goddess of a friend is telling you that she’s not sure she should have written about her experiences with depression and anorexia because it’s not appropriate to tell that kind of intimate story, on her own damn website no less, we have a problem with communication.)

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The Agency of Hardwiring

A friend sent me this article on the correlation between transgender identities and autism spectrum disorders. (Please read on before clicking.) I don’t ever want to say that being trans is an autistic thing – although it happens that all the trans people I know are also autistic, which is a bias most likely explained by the habit of like-minded people flocking together – but when I look at the significant amount of non-binary (which, I remind everyone, is a transgender identity) autistic bloggers, I’m all for acknowledgement. It meets my lived experience, after all.

What I didn’t quite expect was some scientific bullshit about “extreme male brain” and lack of empathy used to rationalise the existence of binary trans-masculine autistics, i.e. the assumption that female-designated autistics are “more masculine” in brain function and therefore it’s reasonable for many of them to be trans men. This invalidates every conversation I’ve ever had with another autistic person (whom I generally find to be more empathetic towards me than the average neurotypical), ignores the fact that autistic trans women exist and furthers an assumption that often denies female-designated people diagnosis (because if we’re not autistic in ways commonly expressed by men, we’re not seen as autistic). It also comes with a massive misunderstanding/mislabeling of the trans experience and forgets, entirely, about non-binary people when it’s not contributing to even more gendering. It’s okay; we non-binary folk are used to not existing. It’s the story of our lives.

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A Philosophy of Natural Movement, Part 1

This is a long multi-part essay on the experience of being autistic, the process of gaining the label, and the nightmare (especially the last two years, especially especially the last nine months) it’s been being an undiagnosed autistic person being treated for depression, anxiety and chronic pain in the Australian healthcare system.

So, of course, I’m going to start with my ongoing love affair with metal music.

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Wanted: an audience

Before I begin, a tangent.

Last time I got wordy, you may remember, I wrote about geek feminism. Or feminist geekism. Either way.

Three weeks after writing that post, I went to the Sunday pre-release event for Battle for Zendikar (the latest Magic the Gathering release). As I was early, as the shop was quiet, and as I’d almost finished my current creation on the way up, I got out my girly-decorated game box, my play mat … and a sewing box, a Barbie and a Barbie-size skirt I’d made out of an old bandanna that needed a hook fastener to finish. If I can sew on the train and on the platform, heedless of what people think about my stashing half-nude Barbies in my bag, I can sew in a game shop, right?

The first thing I was asked by an arriving player, one who knew I was there to pre-release (it’s a verb): Did you bring any decks with you?

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Little steps, strength in numbers, the tales we tell ourselves

Before I ramble, I’d like to say that I know there are comments awaiting replies. You see, right now, despite the fact my rational brain knows that most people care about me, the thought of looking at comments and facing the possibility that someone might have said something that my brain tells me I can’t cope with is panic-inspiring. (There’s a reason why the words ‘social anxiety’ have been adopted by various professionals working with me … which is kind of absurd, since I get paid to fucking talk to and at people, and have just finished a course that involves, in essence, facilitating people talking to each other, largely by means of talking. But that negative evaluation thing in relation to anything I do online? Man.) Since that panic means I don’t write at all, I’ve made a deal with myself. Right now, I get to write posts, and I get to work my way back to writing posts on a regular basis, and when I’m comfortable with that as a process I can start poking at the next terrifying thing (comments, commenting on other people’s posts). So, yes, I’m deeply sorry that I’m ignoring you, and you’d better believe I feel like shit about it, and I’m grateful for your love, concern, empathy, time, effort and thoughtfulness, but … well, online social interaction is more frightening for me than talking to strangers in a classroom or at a con. I’ve actually done really well to get back to a point where my phone is mostly on and I can mostly reply to text messages!

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A return to the world of monsters

(As a prologue, this post goes out to the people of my ACT – Acceptance and Commitment Therapy – group, for their encouragement when I spoke about my blog and the fears that have kept me from writing. Also to Julia Kyle, who just doesn’t give up on me. Thank you for making me feel as though I can, maybe, re-become my warrior-writer self.)

I wish I didn’t have to begin with this literal title.

I wish it with all my heart.

At first … at first I thought it would be okay, moving back to my parents’ place. It would only be for six months or so; I’ve got a room at a mate’s place, back in my beloved Melbourne, as soon as his sister moves out. It would give me time to recover from how severe my anxiety and depression have gotten, living in a space where I have to worry less about the basic struggles of just looking after myself. It would give me time to worry less about money, at least in theory, and work on finding a second job so I can support myself with fewer stresses. It would only be for six months. Endurable, right?

Oh, the lies we tell ourselves when we have no other option!

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